susan@vibrantpathways.com
818-232-3186
Susan Ortolano, M.A., CMRC, PCC
Intuitive Life & Relationship Coach
Leaves

I am excited to share some of the recommendations, tools, and resources that have inspired me and made a difference in my life. The list of books and tools are resources I have used personally. I have included some of the people I have worked with directly who are in the Los Angeles area. Some of them work by phone for those outside of the area. I have also included websites and phone numbers of organizations as well.

One thing I have learned is that there is a real line between being informed about our condition and heavily identifying with it. From my view, it is important to get information about the condition and explore resources as well as to let go of the idea that the condition is "who I am" or something that makes me "unique" in some way, which have been great lessons for me.

There will be ongoing updates to this page, so check back for more! If you have any questions about anything I have listed, feel free to email me directly.

Susan's Personal Recommendations

  • Educate yourself. Learn about your condition. Information can be helpful for your medical care.
  • Be conscious about over identifying with the condition or with being a "sick person" or the "Lyme Disease Girl", etc. That can hinder your progress medically as well as mentally, spiritually, and emotionally.
  • Be conscious about how you share about your condition. This is something that is happening to your body, but it is not who you are. I like to phrase things in the present and past so I leave the future open to the possibility of wellness and happiness. An example would be "I have had Fibromyalgia for 9 years. "Up until now I have not been feeling well". "In this moment, I'm not doing so well".
  • Assemble a good support team of medical care providers, caregivers if you need home support, therapist or psychologist if you need emotional support, spiritual support, and a great Coach to help you rebuild and love your life again. (Hmmm I wonder who that could be...)
  • Create a Support List for friends and family to let them know what you need and how they can help. To learn more about that, you can get my Special Report when you sign up for my mailing list. www.caringbridge.org can offer ways to keep everyone informed and connected via the web!
  • Learn to be authentic, ask for what you need and learn to say "no" to what doesn"t work for you.
  • Create a Self Care Plan. Since things have changed for you, you will need to change the way you care for yourself. Putting your self care high on your list is extremely important.
  • Find ways to laugh....even if it is about something small. I know being sick is not necessarily fun or funny most of the time, but finding humor helps the healing process and reminds you that you can still have fun in your life. You are still allowed to have fun!
  • Find something that inspires you. Whether you pick up a good book, a movie that leaves you feeling good, it opens up hope and possibility for your life.
  • Find tools to help you deal with your feelings and thoughts. Our mind will make up all kinds of stories and beliefs about what has happened and will bring up fear about the direction life might be going. Having tools for that will help you feel more peaceful.
  • Create a new plan for your life. Get in touch with a new more authentic purpose. Having illness does not mean life is over! It means that life is changing and it's time for a new direction. Coaching can help you with that!
  • Allow your friends and family members to adjust and go through their own process, but also know that you are not responsible for their feelings or their experience. My Relationship Support Coaching program can help!
  • Ask why this is happening for you rather than why this is happening to you. That will open up a space for amazing things to come forward.

Books

  • The Sedona Method by Hale Dwoskin
  • The Power of Intention or any book by Wayne Dyer
  • You Can Heal Your Life by Louise Hay
  • The Secret by Rhonda Byrne
  • Books by Catherine Ponder
  • Books from the Abraham-Hicks series by Esther and Jerry Hicks
  • Emotional freedom, Intuitive Healing, Positive Energy by Dr. Judith Orloff
  • A New Earth and the Power of Now by Eckhart Tolle
  • Loving What Is and Who Would You Be Without Your Story by Byron Katie
  • Healing Yourself With Light by LaUna Huffines
  • From Fatigued to Fantastic by Dr. Jacob Teitelbaum
  • Breakthrough by Suzanne Somers
  • Lucky Man and Always Looking Up by Michael J. Fox
  • Living Well Emotionally by Montel Williams
  • Books from Hay House and Sounds True (so many to choose from!)

Techinques and Tools

Organizations

Websites

Toll free numbers for information

  • Allergy Information Referral Line, 1-800-822-2762
  • American Cancer Society Response Line, 1-800-227-2345
  • American Institute for Cancer Research, 1-800-843-8114
  • American Parkinson's Disease Association, 1-800-223-2732
  • Arthritis Foundation Information Hotline, 1-800-283-7800
  • Asthma and Allergy Foundation of America, 1-800-727-8462
  • Cancer Information Service, 1-800-4-CANCER; 1-800-422-6237
  • CDC National AIDS Clearinghouse, 1-800-458-5231; 243-7012 (TDD)
  • CDC National HIV and AIDS Hotline, 1-800-342-2437; 1-800-344-7432
  • Crohn's and Colitis Foundation of America, Inc., 1-800-932-2423
  • Endometriosis Association, 1-800-992-3636
  • Grief Recovery Helpline, 1-800-445-4808
  • Lupus Foundation of America, 1-800-558-0121
  • The Lyme Disease Foundation 1-800-886-5963
  • Medic Alert Foundation, 1-800-432-5378; 1-800-344-3226
  • Medicare Telephone Hotline, 1-800-638-6833
  • Multiple Sclerosis Association of America, 1-800-LEARN-MS or 1-800-532-7667
  • Myasthenia Gravis Foundation 1-800-541-5454
  • National Headache Foundation, 1-800-843-2256
  • National Health Information Center, 1-800-336-4797
  • National Organization for Rare Disorders, 1-800-999-6673
  • National Rehabilitation Information Center, 1-800-346-2742
  • National Stroke Association, STROKES or 1-800-787-6537
  • Project Inform HIV/AIDS Treatment Hotline, 1-800-822-7422
  • Sickle Cell Disease Association of America, 1-800-421-8453
  • United Scleroderma Foundation, 1-800-722-HOPE or 1-800-722-4673
  • Y-ME National Organization for Breast Cancer Information Support Program, 1-800-221-2141

Advocacy Resources:

Advocacy for Patients with Chronic Illnesses offers free information, advice, and advocacy services from attorney Jennifer C. Jaff and other volunteers trained to help you secure your rights. www.advocacyforpatients.org

Needy Meds is a website that maintains a list of drug company programs that provide free medications to those in need, and also a list of national and local programs that provide assistance to people with chronic illnesses. www.needymeds.com

Helping Patients.org is a web site that helps connect patients with different prescription drug assistance programs. www.helpingpatients.org

Patient Advocate Foundation seeks to safeguard patients' access to medical care, maintenance of employment, and financial stability through mediation with insurers, employers, and creditors. www.patientadvocate.org

The Ability Link provides members--women who are unable to work fulltime due to chronic illnesses or disabilities--contract positions in a variety of fields and support to help them successfully complete their contracts. www.theabilitylink.com

AbilityLinks matches people who, because of illness related and other disabilities aren't able to work the standard 40 hour week, with accommodating employers. Non-profit AbilityLinks is based near Chicago but is expanding to provide nationwide service. www.abilitylinks.org

Job Accomodation Network is a free service of the Office of Disability Employment Policy that gives people with disabilities, including chronic illnesses, resources to help them find a job or start their own business. Has a toll free number to call. www.jan.wvu.edu

Disability Rights and Resources The Disabled Online Users Association (DOUA) is a non-profit organization with the sole purpose of bringing the online world of business to those living with disabilities. www.doua.org

U.S. Dept of Labor, Office of Disability Employment Policy is an organization that seeks to provide a world in which people with disabilities have unlimited employment opportunities. www.dol.gov/odep

***I will be continuing to add resources so check back soon for more!

Affiliations


Recommended Resources

Physicians

  • Dr. Craig Jace - Integrative Medicine www.jacemedical.com 818-505-8610
  • Dr. Rob Krochmal - Intgerative Medicine www.mdintegrative.com 310-625-9548
  • Dr. Steven Small - Integrative Medicine 310-305-7223
  • Kolleen Squires, CNP - OB/GYN 818-249-6636
  • Dr. David Silver - Rheumatology 310- 657-9650

Physical Therapy, Energy Healing & Bodywork

Psychological Support

  • Joanne Mednick, MFT 310-666-6691
  • Dr. Ruth Fisher, Psychologist 818- 363-5309
  • Gavin Frye, MFT www.sacredpassages.com
  • Steven Shaps, MFT www.stevenshapsmft.com
  • Ana Adal, MFT 310-849-6490
  • Marya Foley, Ph.D, MFT- 310-358-2910

 

I invite you to explore the possibilities through a complimentary consulation and see how this program could be the next step for you.
Join me and explore the possibilities that are calling out to you right now and love your life again!

Many Blessings,
Susan